WHAT WE DO
Projects
At Parent & Carer Alliance, we regularly participate in exciting projects that are aimed at improving the lives of disabled children. We participate in valuable research to help make lived experience visible and ensure that our communities collective views and experiences are heard loud and clear. Together, we can make a difference!
Continence Product Supplies
"Inaccessible, unacceptable and unaccountable: the
provision of paediatric continence supplies in England, Wales and Scotland" states a study led by Leeds University and supported by Lucy Fullard CEO of the Parent and Carer Alliance.
This research report concerns the way that the health services in England, Scotland and
Wales respond to the continence care needs of disabled children. Its particular focus is on
the provision of containment products (such as nappies, pads and ‘pull ups’). The research
involved surveys of parents of disabled children, the making of freedom of information requests and website searches.
You can download a copy of the report here.
If you would like to discuss the report and see how Parent and Carer Alliance may be able to help you please email us Info@parentandcareralliance.org.uk
Luke Clements
Luke Clements is the Cerebra Professor of Law and Social Justice at the School of Law, Leeds University. Luke is also a solicitor with Scott-Moncrieff & Associates Ltd.
Luke’s academic research and litigation experience is primarily concerned with the rights of people who experience social exclusion, including disabled people and their carers.
He has helped draft and promote a number of Parliamentary Bills aimed at improving the rights of people experiencing social exclusion and in 2013 he was the Special Adviser to the Parliamentary Committee that scrutinised the draft Bill that resulted in the Care Act 2014.
The Parent and Carer Alliance is very grateful that Luke has kindly given his permission for us to use his work and available in our associates library.
Disability Needs Assessment
ParenrtandCarerAlliance was commissioned by Professor Luke Clements and the School of Law’s Legal Entitlements & Problem-Solving (LEaP) Project at the University of Leeds, to undertake a consultation into Disability Needs Assessments.
The aim was to utilise the experiences and expertise of Parent Carers and their families, and to incorporate their ideas, as to how a needs assessment could be done more effectively and result in better support for families whose children have additional needs. This was sent out for consultation with our community and with that of other parent carer support groups around the country.
We adapted the assessment following this consultation and this version, as well as parent carer recommendations for guidance for social workers, was presented to national statutory sector leaders for their views to be included, and is now being used by PCA.
Examination of Fabricated or Induced Illness Cases
The Parent and Carer Alliance used its network of associates and service users to review cases of Fabricated and Induced illness in Gloucestershire.
In 2018 the PCA gained permission from its network of supporters to replay these lived experiences to the appropriate agencies in Gloucestershire.
A summary of these findings and the evidence provided to the Agencies is available through this link.
Charlie Waller
Parent and Carer Alliance took part in training provided through the Charlie Waller Trust and the Place Network to develop, promote and sustain parent and carer support and involvement in children and young people's mental health.
Discovering You Short Breaks
A test and learn project funded through Barnwood Trust that provided bespoke short break packages to disabled children throughout Gloucestershire over an 8-month period. This project gave lots of children that were not able to access activities, new opportunities and experiences through individual and group provision arranged by PCA.