WHAT WE DO
British Institute of Human Rights
We have teamed up with UK wide charity BIHR to demonstrate to parent carers and professionals the importance of understanding the human rights of families with disabled children and how these can be impacted by current systems.
Making Positive Change
Parent and Carer Alliance CIC is delighted to be working with the British Institute for Human Rights to create a guide for Parents and Carers to be able to advocate for their disabled children’s and for their families' human rights. We felt that this work is necessary as we keep seeing other laws being routinely ignored by other agencies. We have lived experience of these situations, and we know how you may be feeling. We provide practical and emotional support and strive for positive change both locally and nationally. Families describe support from the Alliance: “The Alliance has not only helped us to gain more confidence in asking for what our child needs but have also given us a lot of understanding of how/who to ask and what we CAN ask for. When I was on my own, I felt lost, confused, and frustrated, once the Alliance started helping me, everything felt easier and things that I couldn't say, were finally heard because Alliance gave me my voice back. This saved my mental health and my families wellbeing.”
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You Are Not Alone
We are sadly seeing a significant increase in the suffering of families that we support, and we are very aware of the high level of trauma experienced by our families due to the situations that they face - some examples are included in this guide. We hope that by using this guide and by supporting and educating families to empower them, families are more able to challenge the failures that they experience. We believe that this will move many situations forward so that families can get their needs met as well as raising awareness of the level of failures and the impact on families.
We understand that when you receive validation that your human rights have been breached, this could cause a negative emotional impact. Please be kind to yourself and seek support from family and friends whilst you work through any emotions that may stem from this. Seeking support and advocacy is often essential to negotiate the bureaucratic systems that parent carers face. Parent and Carer Alliance CIC contact details, along with details of organisations that can provide more support for your mental health, are listed within the Directory at the end of this guide. We know how hard the injustice may impact you and your family. We want you to know that you are not alone.