Projects (List) | Parent and Carer

WHAT WE DO

Delivering Results, Transforming Services

At Parent & Carer Alliance, we regularly participate in exciting projects that are aimed at improving the lives of disabled children. We participate in valuable research to help make lived experience visible and ensure that our communities collective views and experiences are heard loud and clear. Together, we can make a difference!

Take a look at the Projects we have been involved with

Report on Avoidant/Restrictive Food Intake Disorder (ARFID)

Parent and Carer Alliance C.I.C. has released new findings from a Gloucestershire-wide survey on swallowing difficulties and Avoidant/Restrictive Food Intake Disorder (ARFID). This exposes a severe lack of services, unsafe gaps in care, and the devastating consequences for children, young people, and their families.

Children's Wellbeing and Schools Bill

The Alliance has written to all Gloucestershire MPs to raise urgent concerns about the forthcoming Children and Wellbeing Bill, and to respectfully ask that you do not support the Bill in its current form when it comes before Parliament.

Examination of Fabricated or Induced Illness Cases

The Parent and Carer Alliance used its network of associates and service users to review cases of Fabricated and Induced illness in Gloucestershire.

Disability Needs Assessment

Parent and Carer Alliance was commissioned by Professor Luke Clements and the School of Law’s Legal Entitlements & Problem-Solving (LEaP) Project at the University of Leeds, to undertake a consultation into Disability Needs Assessments.

Luke Clements

Luke Clements is the Cerebra Professor of Law and Social Justice at the School of Law, Leeds University. Luke is also a solicitor with Scott-Moncrieff & Associates Ltd.

Open Letter to Bridget Phillipson

In September 2025 Lucy Fullard CEO of the Parent and Carer Alliance has written an open letter to the Secretary of State for Education.

Parent Blame poster with a picture of a mother cuddling a child

Understanding Parent Blame

Following and supporting the work of Luke Clements of Leeds university. Families who have lived through parent blame already know why this work is so important.
The challenge is helping professionals understand it too.
Because the deepest learning does not come from textbooks.

Child sitting on a potty with spotty leggings on

Continence Product Supplies

"Inaccessible, unacceptable and unaccountable: the
provision of paediatric continence supplies in England, Wales and Scotland" states a study led by Leeds University and supported by Lucy Fullard CEO of the Parent and Carer Alliance.