WELCOME TO
Parent & Carer Alliance C.I.C
Independant and Practical Advice and Support for Parent Carers.
6,156
people
supported through live webinars and events
83
events
have been provided so far
9,427
supported
by social media
2,572
families
supported through the advocacy service
ABOUT US
Stronger Together
Parent and Carer Alliance is an independent Community Interest Company established in order to provide emotional and practical support to parent carers (including adoptive and fostering parents).
PCA was started by Parent Carers who want to make a difference to other families like theirs, to use their own lived experiences to help support less experienced, less able, and more vulnerable families.
We hope that this group can enable parent carers to connect, to create a deeper culture change in society to ensure our families are safe and happy.
SOCIAL MEDIA
https://www.parentandcareralliance.org.uk/bihr
#HumanRightsDay
#StandUpForHumanRights
#DefendHumanRights
#HumanRightsForAll
#EqualityForAll
#FightForFreedom
#JusticeForAll
#EndDiscrimination
#RightsAreHuman
#VoiceForTheVoiceless
#HumanDignity
#NoToInjustice
#EmpowerRights
#RespectHumanRights
#TogetherForRights
#ProtectHumanRights
#FreedomForAll
#SayNoToOppression
#StandForEquality
#UnityInHumanRights
We hope everyone enjoys their gifts and we wish everyone a very happy Christmas from everyone at PCA 🎄🎅🏼
Becky- Family Support Worker
Hi, I'm Becky, I live in the cotswolds with my son who is autistic, and have an ex-racehorse and a puppy. Between them all, they certainly keep me on my toes! I Joined Parent and Carer Alliance after a long fight to get my son support, and I hope that I can use my past experiences to help many families in the future.
We really loved being able to give families sole use of an inclusive environment that normally, they may struggle to access. We are so pleased that we are doing another Christmas Cattle Country Session too!! Look out for the details of this coming soon 😍
I’m Danni, Mum of two girls, family support worker and a parent carer for 10 years. I have a professional background in counselling and a special interest in trauma, and maternal and family mental health. I’m a firm believer in the phrase “become the person you needed and pay it forward” and that’s why I became part of the Parent and Carer Alliance. We feel there needs to be a systemic shift to support not just our children, but everyone facing challenges to achieve a truly equitable society.
Come and join us and chat with other parents and our fantastic advisors at Guild Hall in Gloucester.
Hi, I am Beth and I am Head of SEN Support at PCA. I oversee our Tribunal work and support parents and carers through the appeal process.
My first experience of a SEND appeal was for an EOTISC package for my son which I successfully navigated myself, and won.
I was keen to set up an appeal support service so other families would not have to go through the process alone and since setting up the SEN Support service, 100% of the families we have supported have been successful in their appeals.
Expression of Interest is now open!!!
Please use the link below to register your interest.
Please remember, form completion does not guarantee an activity will be provided, however we will endeavour to match everyone with an activity!! This is a test and learn project.
https://form.jotform.com/241552138761052
Sanchita is an expert in her field and really gave us all the tools to be able to identify when problems become in line with the Human Rights Act 1998.
We are so excited to continue this work with BIHR and believe this will have such a huge benefit to the families we support.
Thank you so much for joining us Sanchita!!!
An Education, Health, and Care Plan (EHCP) is a legal document in the UK designed to support children and young people aged 0-25 with special educational needs (SEN). Navigating the process of securing an EHCP can be daunting, especially when it comes to understanding the legal timescales that local authorities must follow.
Here’s a breakdown of the key legal timeframes associated with EHCPs:
1. Requesting an EHCP Needs Assessment
Timescale: Once a parent, young person, or school makes a request for an EHCP needs assessment, the local authority must respond within 6 weeks to decide whether to proceed with the assessment.
What to Expect: During this time, the local authority will gather information to determine if the child or young person has SEN that requires extra support through an EHCP.
2. Conducting the EHCP Needs Assessment
Timescale: If the local authority agrees to conduct the assessment, they must complete it within a 16-week period from the date the request was made.
What to Expect: The local authority will collect detailed advice and information from relevant professionals, such as educational psychologists, health services, and social care, to assess the child's needs.
3. Issuing a Draft EHCP
Timescale: If it is decided that an EHCP is necessary, the local authority must issue a draft EHCP within 16 weeks of the initial request.
What to Expect: The draft plan is shared with the parents or the young person, who have the right to review it and request changes. You’ll also be able to request the school or institution where the plan will be implemented.
4. Finalising the EHCP
Timescale: After issuing the draft plan, the local authority has a maximum of 20 weeks from the initial request to issue the final EHCP.
What to Expect: The final plan should reflect the child’s or young person’s specific educational, health, and care needs, and outline the support required to meet those needs.
To Lucy and Laura, who have both successfully completed the Charlie Waller Peer Support Training!
This is a huge achievement which will help up to better support our families whilst they navigate the SEND world.
We are all very proud of you! 👏🏻
First-tier educational tribunals play a crucial role in resolving disputes related to education, offering a formal platform for issues like special educational needs (SEN), exclusions, and discrimination. For many parents, students, and educators, navigating the tribunal system can seem overwhelming, but it’s an essential part of ensuring that educational rights are upheld.
What Are First-Tier Educational Tribunals?
First-tier tribunals are legal bodies designed to settle specific educational disputes. They operate independently, offering a neutral space where cases are heard, and judgments are made based on the evidence presented. These tribunals typically handle disputes concerning:
Special Educational Needs (SEN): Parents or guardians can appeal decisions made by local authorities regarding the provision of special education for children.
Exclusions: When a child is permanently excluded from school, tribunals offer a way for parents to challenge the exclusion decision if they feel it was unjust or handled improperly.
Discrimination Claims: Cases where students face discrimination based on disability, race, gender, or other protected characteristics.
How Do First-Tier Educational Tribunals Work?
The process usually begins when a parent/carer, or young person files an appeal against a decision or action taken by an educational authority.
Why Are First-Tier Tribunals Important?
First-tier tribunals are vital because they ensure that decisions regarding education are fair, transparent, and legally sound. They provide a way for families to challenge decisions that could impact a child’s future, particularly in cases where vulnerable students may not be receiving the support or accommodations they are entitled to by law.
Parent & Carer Alliance CIC can assist you through all aspects of the appeal process*. Go to our website for more information!
*PCA are not legal advisors, nor do they provide legal advice. Parent and Carer Alliance CIC accepts no liability for, nor do we guarantee, success at Tribunal.
🍁Jody- Family Support Worker🍁
My name is Jody. I am a parent carer of 2 autistic children.
I am passionate about ensuring that young people have a fair and equal chance to access education and opportunities in life irrespective of disability, with careful reasonable adjustments, we can make the impossible actually possible!
I first used the parent and carer alliance a few years ago when I myself felt backed into a corner, the walls were closing in all around me with conflicting information from the local authority and school leaving me feeling like I was swimming in mud. I was assigned a family support worker and I will admit I felt sceptical and nervous of challenging the school and LA at first, however with the help and support from the parent and carer alliance I used the information to challenge decisions that had been made and the positive impact that this then had for my Children and the change it had on my family left me feeling like I wanted to also be able to help others.
Out of something that was a truly awful, I wanted to make something truly positive.
I am now working as a Family Support Worker for the parent and carer alliance and couldn’t be happier to be working alongside a small team of equally passionate parent carers.
In today's world, fostering an inclusive and accessible environment is more important than ever. One key element of creating such an environment is ensuring reasonable adjustments are made to accommodate individuals with disabilities or those who face barriers in everyday activities.
What Are Reasonable Adjustments?
Reasonable adjustments refer to the changes or modifications made to a workplace, educational setting, or public space that enable individuals with disabilities to participate fully and equally. These adjustments vary based on individual needs but are often simple steps that make a significant difference in accessibility and comfort.
Under the Equality Act 2010, it is not only a legal obligation but also an ethical imperative to provide reasonable adjustments. Without them, many individuals are unfairly excluded or disadvantaged due to physical, sensory, or mental impairments.
💡Examples of Reasonable Adjustments💡
Physical Modifications, Assistive Technologies, Communication Support, Additional Breaks or Movement Breaks, to name a few!
👏The Benefits of Making Adjustments👏
Making reasonable adjustments doesn’t only benefit individuals with disabilities; it enriches the entire workplace or community. When people feel included and valued, their productivity, creativity, and loyalty often increase. In educational settings, students thrive in environments where they can access learning on equal footing with their peers.
Ultimately, reasonable adjustments are a cornerstone of building more inclusive, supportive, and diverse spaces where everyone has the opportunity to succeed.
Let’s continue the conversation and ensure we are actively making reasonable adjustments in our workplaces and communities, making the world a more accessible place for all!💪
💫Laura- Family Support Worker within SEN Support💫
Hi, I'm Laura, and I joined the team a year ago after receiving invaluable support and advocacy services from the Parent and Carer Alliance to help secure my son his much-needed EHCP.
So often as parent carers, we find ourselves in the midst of battles that we didn't even know existed until we are faced with them. And far too many families are dealing with multifactorial challenges whilst statutory services repeatedly fail to deliver.
This role has enabled me to draw on my own experiences and knowledge from over two decades of parenting children with SEND, and utilise this help to empower other parent carers on their journeys.
🍁Alice- Director and Advocate🍁
Hi! I'm Alice and I have been working for the Alliance for nearly 2 years now. I first came across the Alliance when stumbling my way through my journey with my 3 disabled children. They supported me and I soon felt right at home within the group. When I was asked to come onboard as a family support worker I jumped at the chance, and my advocacy skills have grown since.
I have a lot of lived experience across all areas of SEN, which helps me to truly empathise with families circumstances on a personal level.
I am passionate about Law and am currently completing my Bachelors in Law Degree, which I hope to build on, to support my role within the Alliance. My goal is to make legal advice more accessible for families like ours, where it is so often desperately needed, yet barriers stand in the way.
I have keen interests in human rights, education and social care for disabled children and young adults, and strive to support families to achieve the right support, which will enable them to live their lives to the fullest. Life should be for living, and survival is not a sustainable way of living, nor should any family be made to live this way.
I have a strong sense of injustice which I feel supports my drive to get the best outcomes for our families!
I am so proud of all the work we achieve daily as a team, every member goes above and beyond and I am so grateful to our whole team :)
We've all heard the saying, "We're all in the same boat." But when it comes to navigating SEN systems, we believe it's more accurate to say, “We’re in the same storm, but in different boats.” Whatever situations we may find ourselves in along the way, may hit us all at once, but how we experience them depends greatly on the boat we're in.
Some of us have yachts, built with strong resources, strong mental health and strong support systems, able to weather the storm with more ease. Others are in smaller, fragile boats, barely holding together, fighting to keep afloat amidst waves of uncertainty. And then there are those who are left with nothing but makeshift rafts, navigating through with whatever little they can gather. It's also important to note that just because someone is in what seems like a yacht, does not mean their experience will be easier. This is what makes individual approaches so imperative within the work we do.
The key lesson is that while we may be facing the same storm, our experiences differ based on the tools, privileges, and circumstances we have. This perspective invites empathy. It’s easy to judge others when we assume they’re weathering the same storm with the same tools, but understanding that each person’s boat looks different reminds us to extend compassion instead of judgment.
Parent and Carer Alliance foster this inclusivity by supporting each situation individually, and with compassion. By acknowledging the differences in our circumstances, we foster a culture of care and support, recognizing that our collective strength lies in how we lift each other up, especially those whose boats are sinking.
So, let’s be mindful of each other’s journeys. The storm is the same, but the boats are not. In times of turbulence, let's strive to be the lighthouse for those struggling in the storm, offering support, resources, or simply kindness. After all, it's not the storm that defines us—it's how we help each other through it.
#advocacy #ParentCarers #CommunitySupport #TogetherWeGrow #StrongerTogether #strongertogether
How much fun did we all have at @Cattle Country Farm Park brand new Cow Shed soft play?? We hired the venue so we could eliminate all the barriers that disabled families face when accessing activities that are open to the general public.
💗No Crowds
💗More Space
💗Secure Space with One (manned) Lockable Door
💗Reduced Numbers
💗Subsidised Fee
💗Inclusive Environment
So many of our parent/carers expressed how even though they were with their children, because the space was so inclusive and safe, they were still able to have a break whilst the children were happy and safe, with like minded parents and carers who did not judge and just 'got it'.
This is just one small snippet of the Short Breaks Project, funded by Barnwood Trust, and we are very proud!! 🥰
💫Louise- Director💫
I am a Mum to two children, both of whom developed long term medical conditions following infections, resulting in them needing both education and social care support, in addition to their health needs.
I met Lucy at a Positive Caring course many years ago and we became firm friends. When Lucy started building the Alliance I offered my support to help other parent carers.
Over 5 years later I’m still here and am very proud of everything the Alliance does and of how brave and brilliant parent carers are. I don’t have much spare time but when I do I like to make jewellery and to walk my dogs and enjoy the local countryside.
💗Lucy- CEO and Founder💗
Hi I'm Lucy, and I set up the Alliance after our family experienced significant difficulties with the agencies that were meant to be supporting us. I couldn't believe the barriers that we were facing.
It was so bad, I had to do something to change it. I wanted to help other families feel well-informed and supported in any time of need.
I am so proud of the Parent and Carer Alliance and the determined vehicle it has become to create positive change and drive improvements for the benefits of families and professionals.
Next week we will be doing a meet the team feature! We will introduce you to our fantastic team of knowledgable and dedicated advocates and family support workers so you can get to know them all and what makes them tick! 💡
#meettheteam #bestteam #advocacy
Why not join us for our steering committee meeting and help us build the alliance! We value our members views and opinions and they have helped shape who we are today.
We are always looking for new members who would like to have a direct impact on how disabled children are supported and feed ideas into the alliance to help make us bigger, better and able to help more families.
Join us for a free drink and help us make positive changes for families with disabled children.
We will also be planning our Christmas events!
Hope to see you there!!!
An Education, Health and Care Plan (EHCP) is a crucial legal document that outlines the support a child with special educational needs and disabilities (SEND) requires. The accuracy of these documents cannot be overstated, as they play a vital role in ensuring that children receive the appropriate care and education tailored to their individual needs. Here are a few reasons why accuracy in EHCPs is essential:
1. Legal Framework
EHCPs are legally binding documents. This means that the provisions outlined must be adhered to by the local authority and educational institutions. Any inaccuracies can lead to confusion and non-compliance, potentially depriving the child of necessary support.
2. Tailored Support
An accurate EHCP clearly identifies the child’s specific needs and the interventions required. This ensures that educators and health professionals can implement effective strategies that foster the child’s development, learning, and well-being.
3. Educational Outcomes
Correctly documented goals and objectives in an EHCP are crucial for measuring progress. When these elements are precise, it becomes easier to track achievements and make necessary adjustments to support strategies, ultimately improving educational outcomes.
4. Parental Confidence
Parents and caregivers rely on EHCPs to understand the support their child will receive. When documents are accurate, detailed, specified and quantified, it builds trust in the system and fosters a collaborative relationship between families and educational authorities.
5. Identifies Suitable Setting or Provision
The contents of a child or young persons EHCP will pave the way to identifying what sort of school or setting that child needs. Whether that be mainstream, specialist or an EOTAS/EOTISC package, getting the right provision is imperative to children's success.
If you need help or support with your child's EHCP, or you need guidance in applying for one, reach out to us! We can help 🤝🫶
As you all know, we took part in a project funded by Barnwood Trust delivering short breaks to disabled children within Gloucestershire.
This project has now come to a close and we are pleased to say we have finished our evaluation and are pleased to be able to share it with you.
Please click the link below to view and read our evaluation. This was a fantastic project, despite at times being very challenging, but we feel strongly it highlighted clearly what changes are needed to make short breaks more accessible and person centred.
https://www.canva.com/design/DAGPsjmUmKI/1fog_nPvUKDP3ankq8_I2A/view?utm_content=DAGPsjmUmKI&utm_campaign=designshare&utm_medium=link&utm_source=editor
Let us know your thoughts in the comments!!
We are thrilled that we have built an incredible community of parent carers! 🌈👨👩👧👦 This is a space where we support each other, share experiences, and lift one another up as we navigate the joys and challenges of parenting. Each and every member contributes towards uplifting others, and together, we really are stronger 💪
Whether you’re looking for advice, a listening ear, or just a place to connect with others who truly get it, this community is a fantastic resource. 💬🤗
If you’re a parent carer yourself or know someone who might benefit from this, let’s come together and make a difference in each other’s lives. Here’s to building strong connections and celebrating the journey! ❤️💪
You can join us by clicking the link below!
https://info.parentandcareralliance.org.uk/welcome/join-opt-in?fbclid=IwY2xjawFWpqJleHRuA2FlbQIxMAABHVfga6DYd8vl-uka6-z6mQGKkeWzOLNcSDwkOlSMiJuvqOKbz8nZlThQMw_aem_lPP4jGWhvxI7PQbnMIbo2A
#ParentCarers #CommunitySupport #TogetherWeGrow
Find us at @parentandcareralliance
Tomorrow, 18th September
Guild Hall Café, Gloucester
Come and chat to our team of knowledgeable staff, ask questions and request support. Meet likeminded parent carers who just get it! Feel a sense of community and belonging 💗
We hope to see you there!
Hey everyone! We wanted to take a moment to share how vital family feedback is to our organisation.
Being able to evidence the work our organisation is doing is so important, making our family's perspectives incredibly valuable.
Family feedback helps us: 💬 Gain different viewpoints and insights ❤️ Strengthen our relationships through honest communication 🌱 Foster personal growth and self-improvement 🤝 Build a supportive environment where we can thrive
#FamilyFeedback #GrowthTogether #SupportAndLove
Hey everyone! 🌟
We are always looking to broaden our knowledge and keep up to date on the latest changes in the legal and educational world, additionally refreshing our knowledge helps us always do the best for the families we support! 📚💡
Why is it so important? Here’s why:
Keeps Skills Fresh: In today’s fast-paced world, technologies and best practices evolve rapidly. Regular training ensures that our team stays up-to-date and can leverage the latest tools and techniques.
Fosters Innovation: Continuous learning encourages creativity and new ideas. When our team are exposed to new concepts and approaches, they’re more likely to contribute innovative solutions.
Fills our Staff with Confidence: This job can be a minefield, as most parent carers can understand! We keep our knowledge tip-top to ensure we can confidently advocate for the families we support, which in turn secures the best outcomes 😍
Let’s keep learning and growing together! 🚀💪
#ContinuousLearning #StaffDevelopment #TeamSuccess #InvestInPeople
Our Recent Posts
TESTIMONIALS
What People Say
“Their advice has made a huge positive impact on not only my child’s school life, but also our family life. My advocate stepped in when I was starting to lose hope.”